I’m fed up of having to perform my disability

Kira Morgana:

It’s even worse for those with no physical symptoms – people with Autism for example – they sound, look and mostly act normal… yet put them in certain situations and they go from being “Weird People” to being considered “abnormal”… and yes, they still need the support that disability allowance brings.
So what do we have to do? Put a sign on every autistic child’s chest saying “I have Autism, I need extra care and help to get through life. My parents are not scroungers.”

Originally posted on Scope's Blog:

Guest blog by Lucy Britton, who is available to answer your questions and comments on our online community now. She would love to hear from you, so please do drop her a line!

When getting out of my wheelchair to climb into the car I have two signature moves. One is to stand up and to loudly declare to all who can hear “it’s a miracle!” The other is to steer my chair level with the seat and move my bum over as if my legs are paralyseLucyd. Which one I choose depends whether I’m in a belligerent mood, or a vulnerable one.

I can stand, just not for long, and I can walk, just not very far. I need to use my wheelchair in order to have a hope of going anywhere beyond my own home. Limited as my mobility is, though, I am still made to feel like…

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Not in My Backyard…

There’s a lot of mileage in that phrase – Not In My Backyard or NIMBY as it’s also known. For example, a lot of people object to having recycling facilities / renewable energy  close to them. But it got me thinking…

…yes, I know that’s dangerous…

… like the Smog that Britain has been covered with this week. The UK has clean air policies which means we don’t produce as much Smog as we used to (no pea soupers in London anymore) yet, we still get the Smog from other countries.

There’s even a website that will show you what the air quality is like in your country –

Picture1From – http://aqicn.org/map/world/

But while I was thinking about this, the thought occurred to me that the whole world is our backyard now. There are people who I talk to every day on Facebook who in the “Real World” (as opposed to The Internet) are hundreds and thousands of miles away from me, but we carry on conversations about various things as if we were leaning on the fence in the back garden, or having coffee together …

…actually in some cases, we are both drinking coffee even though we aren’t in the same place.

I can talk to someone in Australia, several people in america and a couple of people in Asia (Japan / China / Thailand) at the same time as talking to someone in London and Edinburgh, while having a separate conversation with TOH in my living room about the kids or what to have for dinner.

When I was a kid, the phone was something that sat in the hall on a wire. Computer games ran through a TV and we had to pay through the nose to talk to our dad in the USA… Now, it’s all so commonplace and unremarkable.

The whole world is our Backyard.

Air Pollution, Global Warming, Wars –  They’re not Somebody Else’s Problem anymore, we all have to deal with it.

And that is scary.

All about Edie

Kira Morgana:


Originally posted on The Ten Thousand Hour Mama:

I just saw this article on The Huffington Post, which featured a dad’s response to a day care questionnaire about his 11-month-old’s personality. It cracked me up, and I decided to do one for Edith, too.

My name is Edith Mae

My strengths are

Biting, gnawing, chewing and leaving two tiny teeth marks on just about everything
Furrowing my brow
Anticipating the moment my parents are about to set me in my crib and crying
Blowing spit bubbles and raspberries

My interests are

Smooshed bananas
My dog Finn
The ABC Song

The friends I like to play with are

My hands
My parents’ hands
Anyone else’s hands

My goals are

Finally picking up the print on my parents’ bed sheets
Scooting more and more
Squirming out of the damn car seat
Chewing on everything ever made ever

Here Edith works on scooting. Here Edith works on scooting.

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